Responding When Your Relative is Diagnosed with Cancer

Responding When Your Relative is Diagnosed with Cancer_0325_KF_MW (1).docx A special thank you to Kaitlyn Teabo of the Mesothelioma Center for writing this guest blog for my site.

When a family member is diagnosed with cancer, it can be hard to initially handle. It is common and natural for you both to feel overwhelmed, scared, angry, sad and other emotions all at once. This compilation of emotions can make knowing exactly how to react to the diagnosis that much harder.

If you want to help, but you’re not sure how, here are some ways you can make the process easier for your relative and yourself: 

  • Listen. People process issues like a cancer diagnosis by talking about it. Show that you are listening by occasionally paraphrasing what your relative said and asking if that is what they meant. Unless asked, in the early stages of the diagnosis don’t offer advice. Your ears are worth more than anything at this point of the journey. The doctor will help your loved one and yourself through the process, discuss their prognosis, and help find the best treatment centers in your area.
  • Tell Your Relative You Love Them. Even if you think it is implied, hearing that someone loves them can help with feelings of depression and isolation, which are common after a diagnosis. Show affection when you can, this effort can have a huge impact on the coping process.
  • Don’t Compare. Sometimes when someone is going through a similar experience as you or someone you know, it may be easy to bring those experiences into conversation. But not all cancer experiences are the same, which is why you shouldn’t compare your friend’s mom’s cancer to your relative’s cancer.
  • Help Without Being Asked. Some cancer patients don’t like to admit they need help and will neglect to ask when it is necessary. Little gestures can often make the biggest difference. Make your relative’s favorite meal or dessert and stick it in their fridge. Help with the laundry and housework. Drive them to appointments or do daily errands.
  • Provide Comic Relief When Necessary. Yes, this can be a trying time for your relative and other members of the family and close friends, but it is also important to remember to laugh. Be careful not to offend your loved one, and only provide humor when it is appropriate. Remember to stay sensitive when they are grieving and offer a chance to laugh when they could use the reminder. Humor can be a great form of medication and may offer a way of healing.

As each diagnosis and each person affected by cancer is different, the ways to help your relative overcome the disease may also differ. These tips serve as a helpful guide, but you are ultimately the best judge on how to respond and act around your loved one. The most important thing is to just be there for them while providing support.

Author bio: Kaitlyn Teabo is a writer for The Mesothelioma Center. She combines her interests in writing, cancer research and emerging scientific technology to educate the mesothelioma community about asbestos and its related diseases.

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1+1=2 Boobs

Breast Reconstruction T-Shirt

I needed to buy a breast, but I haven’t worn a bra in 6 months. I hate wearing a bra in general, they bind my ribs and pinch my still healing tissue. Getting dressed with just one boob is no easy task either. I searched my drawers for a do it yourself solution. I found some removable cups in my bikinis and placed them in my bra-shelf camisole. That didn’t work out too well because they would come loose and end up in the center of my chest or in my armpit. Plus they did not mimic my other breast in size or shape. It was time to get a breast prosthesis. I plan to attempt reconstructive surgery again, but in the meantime, I need some options.

The Certified Mastectomy Fitter was very kind and knowledgeable, and she took her time helping me to find just the right form and bras that I could wear comfortably. It took two visits totaling four hours to get it just right. I had no idea how comprehensive the fitting would be. We were in an exam room, and she had cupboards full of special bras with pockets in them to hold the forms. Once I found a style that was tolerable to me, she fit  the right cup with different size and shaped forms. Some were foam, some were made of soft fabric stuffed with little beads that conform to your body, most were silicone with a nipple built right onto it. When I gravitated towards the weightless foam numbers, she cautioned me that it is important to have some weight in your prosthesis. She explained that the body’s bio-mechanics get all out of whack when you have weight on one side but not on the other. Women, especially large breasted women develop neck and back pains from not having the weight evenly distributed. Makes sense, huh?

Certified Mastectomy Fitter

She pulled out dozens and dozens of these forms and shoved them into the bra one at a time while tugging this way and that way trying to line up my natural nipple with the prosthetic one. I winced in pain every time she came at me with one of this forms; I wasn’t prepared for her hands to be inside my bra the whole time. I left sore and exhausted after the first visit. On the second appointment, I pre-medicated with a pain pill. She had no problem digging around the interior of my bra.  Adjusting both sides this way and that, adjusting and measuring for the perfect alignment, size and shape.

External breast prosthesis after proper fitting

When we got the fit just right, I put my shirt back on to see how it looked under clothes. I was very impressed! She got it just right. I could not see a difference between the implant on the left and the prosthesis on the right, it looked great! I stood a little taller as she was surveying her work; I could feel my confidence rise. This was going to be manageable; I could bridge the gap between reconstruction attempts with this set up. I could also wear more of my clothing, I would no longer be limited to what I could wear with the camisoles and the homemade form that goes awry. She got a kick out of my attempt to make something at home to fill the space until I was healed enough to be fitted. She let me know that my insurance would cover 2 forms and 4 bras so I was able to get the foam one to exercise in and the silicone one for the needed balance of my bio-mechanics.

I was not prepared for my body to reject the implant, twice. This wasn’t supposed to be part of the equation, well, neither was the 2nd or 3rd recurrence of breast cancer for that matter. I have learned a lot about human suffering and about the one thing that I can control when the inevitable suffering comes my way… and that is how I respond to it. We are not meant to be perfect, we are meant to be whole beings; the good, the bad, the beautiful, the ugly, and then most importantly, our response to it all.

For more on this topic, check out part one of this tale: Prosthetic Breast, Seriously?! http://www.trinaschilling.wordpress.com/2013/03/11/prosthetic-breast-seriously/

Prosthetic Breast, Seriously?!

prosthetic breast 1

Part one of my sagas.

The word prosthetic to me sounds old, broken, missing, braced, fake or injured. It gets stuck on my tongue and I don’t like it. I don’t like the way the word sounds, and I don’t like saying it. What is it supposed to mean anyway, a good aesthetic? Does that mean without a prosthesis, I don’t look good, that I am unpleasing to the eye? Crap that is a lot to digest since I have endured 16+ surgeries trying to look “normal.” Still after all of those surgeries, my body rejected the implant, twice.
prosthetic breast

I don’t want a prosthetic breast, although my mom points out that an implant is a prosthesis. Technically she is correct, but for this article I am referring to an external device. I don’t want one because I don’t intend to remain in my current physically unpleasing to the eye state of being. I plan to be fully reconstructed and I have a wonderful and talented plastic surgeon who agrees with that plan. However, in the short-term, until my body can fully heal from the complications of so many surgeries and radiation treatments, I have a missing accessory. One would not be able to stop themselves from staring at my single perfectly augmented breast compared to the empty, hollowness on my right side. I have come up with a temporary solution; gauze (still healing) and cup type inserts that are removable from my bikinis. These breast shaped pads work great, but they sometimes become dislodged from the shelf-bra camisoles that I wear; I’m still too sore for a regular bra. When they become lose they land somewhere in my armpit or in the center of my chest, which is definitely not pro-aesthetic!

After I finished breast-feeding Curtis, my B cup breasts shrank to AA (which really means negative A in the bra sizing world. Why does a DD mean larger than D, but AA mean smaller than A?). I was spending a lot of time on our boat and in bathing suits, and I didn’t want to go out and buy all new smaller cupped bikinis, so I purchased the chicken cutlet looking breast inserts that some women wear to enhance their cup size. They are made of a silicone type gel and they are pretty heavy in weight. They worked fine to fill up my bathing suit tops, until the day I left them in while water skiing. I took a nasty spill that day, and those cutlets flew out of my top and were floating on top of the lake. My friends in the boat had a good hysterical fit of laughter as they were pointing to the fake boobies bobbing up and down in the water while I tried to swim after them to retrieve them. I laughed too, I don’t know why I thought those things would stay in place, and I was slightly embarrassed that my secrets were out and floating on top of the wake for all to see. I hated wearing the cutlets, they were hot and sweaty and obviously prone to fall out because of my active lifestyle. I immediately went out and bought all new bathing suits and sold the cutlets at a garage sale, those suckers were expensive, so I knew someone would buy them. I learned to embrace my small breasts, dress accordingly, and never ever considered augmentation until I was faced with reconstruction post-mastectomy. I quickly warmed up to the idea of insurance paid implants; I think they are the silver lining common denominator for breast cancer survivors or those having a prophylactic mastectomy.

So now I am planning an annual family trip to Puerto Vallarta, and I am wondering how I am going to navigate resort wear with only one breast. I decided it was time to go for a prosthetic fitting. Fitting, the word should be used to describe Kim Kardashian with a flock of stylists pinning her outfits on her in a way that shows off her spectacular curves. That’s the kind of fitting I want, not one for a fake external boob.

prosthetic breast 6

When I lost my hair from chemo, I would only wear wigs if I were going out in public. I wore them mainly to make other people feel comfortable around me. I didn’t want my cancer to be the center of attention and by wearing a wig I could blend in. People around me were more comfortable without ever even knowing that I was making them feel more comfortable. I on the other hand was not physically comfortable; wigs are hot, sweaty, and itchy, just like the cutlets. So mainly I would wear a baseball cap or a beanie type hat more often than wearing wigs for jaunts to the doctors for treatments or to the store or gym. I was able to continue to work out at the gym during my off weeks of chemo and would just throw on a baseball cap. I drew a lot of stares, but eventually people got used to seeing me at the gym with my bald head under a baseball cap, or I simply got used to the stares. However, I’m not prepared for people staring at my chest and trying to put together the pieces of my life in their minds, especially in a bathing suit.
prosthetic breast 4

I called the local cancer resource center and asked them if there was a place in town that sold breast prosthesis. The center gave me three names: a prosthetic business, a pharmacy, and a lingerie store. I called the prosthetic company versus the lingerie store, I already knew what the lingerie store sold; cutlets. I couldn’t imagine that a pharmacy would be a good place to try on fake boobs for size so I didn’t even write that phone number down. The lady who picked up the phone was kind and told me that my insurance would pay for the visit and for the prosthetic, good news, so I set up an appointment for the following Tuesday.

“It’s no big deal,” said my mom who wears a prosthesis after her own mastectomy decades before. She had widespread early stage breast cancer, had a unilateral mastectomy and reconstruction, and fortunately her breast cancer has not returned like mine did. “See look at mine,” she said as she pulled it out of her bra and waved it at me. I laughed as I dodged it. She uses a prosthetic to create symmetry; reconstructive surgeries are far more sophisticated now than they were 25+ years ago. My mom is obviously comfortable with not only saying the word, but showing me the device. “It’s quite comfortable and look here at this area, it absorbs the sweat,” she was saying and pointing. I looked more out of the corner of my eye than dead onto it, I didn’t want to interact too much with my mom’s prosthetic breast. I didn’t want to face my own need.

prosthetic breast 2

We had a good laugh at the whole thing; sitting outside on the deck drinking Chardonnay with the sun on our chests as we shared our battle scars with each other. Anyone could have driven by and seen us, but we didn’t care because we were not alone in our suffering and we could laugh at our circumstance.

Next week,part two, after the fitting, which by the way seems like a very formal process. NOT looking forward to it. Not at all…

prosthetic breast 3 prosthetic breast 5

New Day, New Doctor, New Hope

Switching doctors
You have heard the saying “It takes a village.” This holds true for cancer patients; it takes a huge team of doctors to treat a person with cancer. It is an often confusing process for the patient; one doctor prescribes a medication and then sends you to a different physician for a drug to counteract the side-effects of the first one. One doctor has an opinion and the next has a different view point. Medicine is not as black and white as one would think, there are too many variables. I consider myself a very informed patient; 20+ years in the pharmaceutical industry taught me how to research, read, and understand studies. I have also had a lot of training on effective communication with physicians. These skills come in handy as a patient.

From the beginning I wasn’t connecting with the oncologist that I was originally referred to following my first diagnosis of breast cancer. She was defensive and condescending during our interactions. Was it because I came to all of our appointments with my black leather notebook filled with my own research and lots of questions for her? Or was it that she had other things on her mind, like her own fiscal health? Either way, I stayed five years and three diagnoses too long.

Have you ever thought to yourself I don’t think this is the right doctor for me? If you have, you were probably right. There is a large continuum of skill and competency in any industry, even those that practice medicine. What? That’s right, I said it, there are some terrible doctors practicing medicine. I saw this first hand over the two decades that I was in “the business”; most doctors were good, some were mediocre, and a few were down right bad.

I should have followed my gut; I should have switched oncologists a long time ago. Why didn’t I? For the same reasons as most; we are indoctrinated to believe that doctors are the all-knowing, ultra-educated, experts on health and medicine. That’s all fine and dandy, after all, they do possess a lot of education and training, but that doesn’t guarantee that they will be good doctors or click with every one of their patients.

Just in case you have never received permission to challenge your doctors or seek a new one if the one you are seeing isn’t working for you, let me be the first to offer you that permission. If it doesn’t sound right, feel right, or the person makes you feel uncomfortable in anyway, request your records and get the hell out. Find a doctor that works for you, not just for their own bottom line. Medicine is commerce and one should have their eyes wide open on this knowledge, and never forget the patient is the customer. I have seen the same scenario play out over and over again in doctor’s offices; the doctor is kind, calm, and happy, so is their staff. Then they move into a new building, take on a huge mortgage and they become anxious, rushed, and snarky, and so does their staff. Doctor’s in private practice work hard to cover their overhead and Medicare and the insurance companies pay less and less each year for services rendered. Couple that with a patient who has a disease and wants compassion, time with their doctor, answers to their questions, a plan to get healthy or stave off disease, and it can be like water and oil.

So what do you do? You get personal references from friends, family, acquaintances, or on-line (healthgrades.com is an on-line service where you can gain valuable information and reviews on doctors). Listen to your gut, and make a move if necessary. People stay longer than they want to with their hair dressers and their doctors because they don’t want to make anyone feel uneasy. When I lost my hair from chemotherapy; I thought to myself that was the perfect time for me to switch hair stylists. I loved the stylist that I had been going to forever, but I thought he was charging me way too much and sometimes he seemed distracted and I left his chair with a bad pixie cut, however, it took me being bald to make a change.

So on my last uncomfortable visit to my oncologist, I said enough is enough. I requested my records and got the hell out. I asked my breast friends who they saw and a particular doctor’s name kept coming up. With a little help from a dear friend who happens to be a physician, I was able to get an immediate appointment with this oncologist that I was courting. Right off the bat I liked him. He said the one thing I had been longing to hear, “It’s hard to believe this right now Trina, because you have been in the thick of this disease for so long, but soon you will have all of this behind you, you will be cured, reconstructed and you will go on to live a long and healthy life just like the rest of us.” Hope. He gave me hope. Hope that I would be whole and healthy. Hope that I didn’t have to feel uncomfortable with any part of my health care village.Hope that I had found the right doctor for me. This hope was worth any uneasy feelings that came with a break-up.
New HopeNew Doctor

No Fear

This is what I know for sure. After three diagnosis of breast cancer, I don’t fear much anymore.

It has been said that there are two psychological houses that humans approach each and every situation from; the house of love or the house of fear. If you approach life with love then you are compassionate, forgiving, loving, giving to others, altruistic, kind, empathetic, ready to serve, possess inner peace, forgiving, and you don’t lead with your ego. If you live in the house of fear, then you lead with your ego, constantly beating on your chest to prove that you are right, you are angry, hurt, snarky, rude, demanding, and unforgiving. The truth is not many humans achieve living in the house of love at all times, that is what makes us human, we possess a myriad of emotions and learning to control and direct them for the good of yourself and others is a very hard thing to do. It takes practice, discipline, willingness, and hard work.

So what is it that we are afraid of in this house of fear? I say we fear not being loved. Which let’s face it is a fascinating concept; we act in fear because we are afraid we won’t be loved, instead of acting through love where love has no fear. I know, I know… I am starting to lose myself here. It is a complex, yet simple theory.

So back to my lack of fear, when I say I don’t fear much, that doesn’t mean that I don’t visit the house of fear, it just means that I have stopped living life in fear of all things big and small. I am not afraid to take a risk, to say what I mean to say, to stand up for what is right, to show up and be counted, to take a leap, to try a new hair color, to learn a new trick, to mend a fence, or to tear one down if it no longer serves me well. No fear. I don’t have time to be afraid. Do you?

A week ago I attended a memorial service for a 17-year-old boy who died tragically in a car accident. He went to the same high school as my son, they played little league together when they were young and I have known his mother professionally for 21 years. The entire high school and their parents were at this memorial, we are a small, tight knit community and to lose one of our children had a ripple effect that enveloped us all. There is no greater a test on this earth than the one that was set before his parents.

Alex Maier

Alex Maier, a fearless hero to me.

We stood in silence in the stands of the football stadium, where Alex was a star soccer player. You could have heard a pin drop as Alex’s parents walked through the two rows of soccer players to the white chairs that were set out for them in front of a stage where large pictures of their son smiling for his senior photo sat on easels. They sat down at first, but then his mother, father, and sister, stood back up and turned around and faced all of us standing there for them and for their son. With their arms wrapped around each other for support, they stood looking at us looking at them, acknowledging all of us with love and appreciation. They were thanking us for showing up, for showing support, for sharing love with them. They did not exhibit fear at that moment, only strength, grace and gratitude.

Alex was a giver, unbeknownst to his parents he had signed up to be an organ donor when he applied for his driver’s license. He saved 6 lives with his generous gift and gave many more the chance to heal with tissue donations. I am a recipient of donor tissue. I have received this gift from a stranger during a reconstructive surgery. I quietly vowed to Alex that I would live in service of others, working hard to live in the house of love and to be forever fearless.

What do you fear? And are you a registered organ/tissue donor?

organ tissue donor

One Tit Wonder

One Tit Wonder  

I only have one boob, so what?

It would have been nice if everything worked out the way we plan for it to, but life doesn’t happen that way. I have come to expect that if something can go wrong, it will, and I am okay with that; besides, all of these adventures give me a lot to write about. It also gives me an enormous depth of empathy for others as they work through their own battles in life, and it gives me a lot of appreciation for what I do have; one disease free perfect breast.

It was after 6 pm when my plastic surgeon called. He said, “Thank you for seeing the infectious disease specialist today, I also saw him in the halls of the hospital and he shared with me his recommendation to remove your right breast implant.” “Yes.” I replied. “Trina, it is my recommendation as well, I just don’t think your body will accept an implant at this time. You have been through so much, we need to give your body a chance to heal and then we can revisit the reconstruction process later.” “Okay.” I quietly eeked out. I knew they were both right; my body was trying to expel the implant on its own, but disappointed doesn’t even begin to describe how I was feeling. I had endured so much: 15 surgeries to that breast, constant pain from the tissue expander for 9 months, 70 radiation treatments, 4 months of chemo, a year of Herceptin infusions, hot flashes from the Tamoxifen, blah blah blah…This part of the treatment was going to be the easy part; exchanging the tissue expander for an implant; the end of the tunnel, the finish line, over, complete, two breasts and no cancer. I had paid my dues, or so I thought.

The day before the surgery, I stood in the shower and broke down in tears, wailing sobs, shoulders shuttering tears, hands covering my face tears. Joe came into the bathroom and said in a quiet concerned voice “Hey, hey, what’s this about love?” “I’m just so sad about all of this, my body needs a break”, I replied. Joe sat in the bathroom with me while I finished crying and then he helped to dry me off with a towel and hugged me for as long as I needed him to. “I will love you no matter how many boobs you have”, he said, and I smiled because I knew that to be true, Joe is a good man, a very good man.

The morning of the surgery, I had a quiet resolve. I would be okay, I am a fighter, I am a survivor; I am a warrior.

Breast reconstruction surgery

Can I get a frequent flyer card for all of these surgeries please?

I expected to be knocked down emotionally after the surgeon took out the implant, and left me looking imbalanced, and for a few days I was. It took me 4 days to look under the bandages; I didn’t want to see the deformity that resided below the thick white gauze. Joe and I looked up Google Images of women who had one breast, so we had an image in our minds of what to expect. I knew it wasn’t going to be pretty, and I knew I would have to face my own image in the mirror sooner or later.

When I was finally ready, Joe gently peeled back the bandages and I could see by the look on his face that he wouldn’t be turned off by my lack of a mammary gland, fake or real. “It’s not that bad”, he said. I glanced down and took a deep breath, “Okay” I sighed. Looking in the mirror of myself was hard, is hard. The right side of my chest looks like a little old lady took out her dentures; the left side has a perfectly proportioned implant, it is kind of comical when you think about it.

On a follow up visit to the surgeon, we agreed to take it one week at a time and give my body the time it needs to fully heal. I let him know that my goal is full reconstruction and although I have been a pain in his neck for the last 5 years, our relationship wasn’t over yet. He smiled and said “It’s always good to see you Trina, and I’m glad to see your spunk is back.”

For now I will enjoy getting on with my life and you can just refer to me as the Unaboober, or how about Lefty, or you can stare at my platinum blonde hair and not even notice the disruption in symmetry. Either way, I am cancer free and happy.

Enjoying life after cancer

Watching my beloved son play Varsity Basketball

Surviving breast cancer

Enjoying life with my girlfriends.

Angry Boob

 

My breast is angry, and it is shouting at me and spewing vile. I am fighting with it on a daily basis, trying to save the implant that my body is vehemently rejecting. I have been thinking about my breasts non-stop for the past five years and I am getting sick of them, but they won’t let me rest. The right one in particular is like a defiant child; always in trouble, always causing problems, not to mention trying to kill me.

After I finished chemo, the surgeons took out the implant that was placed during the reconstructive process post-mastectomy. They explained to me that I would have to have a tissue expander placed in my chest wall to hold the space while I underwent my second round of 35 radiation treatments in the same right breast. The tissues contract around the implant or expander during radiation causing pain and dimpling, which can result in an undesirable cosmetic outcome. So the soft implant came out and the hard tissue expander went in. I had to live with this expander for 9 very long months. I was in constant pain and discomfort, picture a squeaky toy in your chest wall. Finally the radiation oncologist and the plastic surgeon agreed that it was time to swap out the expander for a nice soft silicone implant. That was on October 19. Here we are on January 11th and the incision from that surgery has never closed. One of the many side effects of radiation is that it degrades the tissue and the local vasculature system and healing can be prolonged and complicated. Translation: they burned the shit out of my breast and severed the blood vessels in an attempt to keep the cancer from rearing its ugly head for a fourth time.

On November 19th, my plastic surgeon performed an emergency surgery to remove the month old implant and replace it with a fresh one and then revise the incision to see if he could find some healthy skin that would heal. His thought was that there was a low level of bacteria on the implant and causing things to fester instead of healing. He put the dreaded drain back in and tried a stronger oral antibiotic to see if we could prevent my body from rejecting the implant. The incision still would not close. The prescribed antibiotics caused severe joint pain and I felt very ill and in a lot of post-surgical discomfort. I was feeling as bad as when I was going through chemo, I was expecting this part of the treatment to be easier. What was I thinking? None of this has been easy for me…

A week later, I went in for a scheduled appointment to see the surgeon and he added some stitches to the incision in his office. Not a pleasant experience at all, I struggled to maintain my composure. My son was my driver that day, and he had to wait for hours for me to get sewn up again. I was only concerned for his well-being and how the long wait was affecting him. It is very hard for him to see his mother going through so much pain and suffering and for so long. I try to hide it from him, but on this day I needed him to drive me to the surgeon’s office; so he had to experience seeing his mother in a weakened and needy state. I tried to lighten the mood by letting him choose where we would pick up dinner from on our way home. He was driving his new car, so he was enjoying that a little, but I could see the anxiety on his 16-year-old face. I wanted to protect him, not ask him to take care of me, but Joe wasn’t available and I couldn’t drive.

The additional stitches didn’t do the trick and the incision slowly opened up again from the force of the fluid building up and the foreign object in my body. An infection set in. I woke up one morning with a 102 degree fever and chills so violent that I thought I was having a seizure. I immediately called my surgeon. He told me that he wanted to start me on IV antibiotics and that I needed to stay in bed while we got this acute situation under control. I honestly didn’t have any intentions of going anywhere with 102 degree fever but I absorbed the seriousness of what he was saying.

The next day I was admitted to the “Day-Stay” department of the hospital to have a PICC line (peripherally inserted central catheter) put in my artery where the IV antibiotics can be infused at home instead of in a hospital. I was happy to have the option to stay out of the hospital, but having a PICC line inserted was no easy task. The specialized nurse used an ultra-sound to locate the artery in my upper arm that leads towards my heart and then after a meticulous sterilization process inserted a long catheter into the artery. Dangling from the end of the catheter are two ports; one for the antibiotics and the other to draw blood from if need be. He put a complicated sterilized bandaging system over the opening of the PICC line and then wheeled me to X-Ray to make sure the catheter was placed correctly. Since I am on the thin side, I can feel the catheter in my arm inside my artery. It gives me the heebie jeebies, and I don’t like it at all. It makes me feel vulnerable to have a drain coming out of my side, a PICC line in my arm and an open incision on my breast.

After about four hours in the hospital and my first dose of IV antibiotics, I was released to go home and rest. I was assigned a home health care nurse; Eli. Eli is adorable, calm, and compassionate. I like all of those qualities in a human being so I was happy he was assigned to me. He came to the house and set up the IV pole, as well as the bags and bags of supplies that we would need to care for the PICC line and  to get those infection killing drugs into my system. Eli got busy teaching Joe how to administer the antibiotics and to keep everything sterile. I was surprised at first that they would leave this to Joe to administer, but Eli reassured us that he would be coming daily until Joe had the process down cold.

My fever broke after a day or two on the antibiotics, but the incision still wasn’t showing any signs of healing. My plastic surgeon asked me to come into his office on a Saturday; he wanted to try to revise the incision once again and put the drain back in since he had removed it on an earlier visit. We were trying to buy us some time for the antibiotics to work. I took 2 Xanax and 2 Percocet before I went to his office, I knew he was going to “operate” on me again without general anesthesia and I needed to insulate myself from what was about to come. The drugs helped, but being awake while someone is knuckle deep in your chest is not for the faint of heart. He tried to distract me by asking questions about my son, but I could see his bloody fingers and feel the pressure of his hand inside me as he tried to push the implant aside to make room for the drain. He stitched me up and I stumbled back out to Joe who was waiting for me in the other room.

Two weeks of IV antibiotics have turned into four, and an additional broad-spectrum oral antibiotic was added to my treatment. The skin around the adhesive bandaging protecting the PICC line blistered and became weepy so I ended up at the Emergency Room with a possible PICC line infection. You can imagine how dangerous that is, since that catheter is in my artery leading to my heart; and the damn incision just won’t heal.

I was sent to see an infectious disease specialist to see if he could save this implant and get the area to heal. We knew each other from my two decades of being a pharmaceutical rep so he was very tender and kind with me and spent a lot of time talking to me and painting analogies to help me understand his opinion. Tears ran down my face as I heard his recommendation; the implant would have to come out.